Don’t manufacture my meaning: a response to Darian Leader

Does illness have a meaning? Does mental distress represent underlying patterns? In experiencing the major mood shifts that constitute bipolar disorder, are we playing out unconscious thoughts or feelings from our earliest years? Darian Leader, writing in the Guardian (Bipolar memoirs: What have I done?), is sure that there is more meaning to be found in psychoanalytic interpretations of bipolar than in the continually expanding and ever more complex diagnostic categories of the “bipolar spectrum”.

Judging by reactions to Leader’s article, people with the condition hold a whole range of opinions on the matter. Some people feel that it is useless, insulting even, to seek meaning in suffering. For those who hold that bipolar is essentially a disorder of genetic quirks leading to poorly balanced brain chemistry, there is no underlying meaning to be sought. The medium, or rather the malady, is the message. There is no need to dig, to explore, to search for significance.

Bipolar sufferers with a strong personal faith may appear to at odds with those whose understanding of the condition is rooted in biology. But for people with faith, too, there may be little need to establish “meaning” in actual mood states. The emphasis may be less on the behaviours driven by bipolar, than on the individual’s response to pain and the potential for suffering to lead to greater personal and spiritual development.

Speaking for myself, I am not sure 100% sure that my bipolar has meaning, but neither am I convinced that it doesn’t. Bipolar is the biggest emotional thing that has ever happened to me. Distressing life events – bereavement, divorce, or debt – the kind of things that friends describe as “the worse thing that ever happened to them”, pale into insignificance in comparison acute, suicidal depression or the agitated distress of mixed mood. It seems to me quite natural to want to find some sort of context or even, yes, meaning for that the suffering I experience, just as I felt the need to look for meaning in the acute physical pain of childbirth.

The job of psychoanalysts is to work with the client to help them contextualise distress within their early experiences and current unconscious mental processes. I am not anti-psychoanalysis; indeed a decade ago I made much use of Jungian techniques to explore early memories and how they connected to my current mental distress. I used all kinds of art and writing techniques to dig deeper than my surface feelings about my illness. Through these techniques I learned that my feelings about my early experiences were legitimate, and that I needed to look after my younger, damaged self in order to more forward. I felt empowered by having found some meaning that resonated for me.

Where I take issue with Leader’s current focus on bipolar is that he is discerning and ascribing meaning to a condition that is not his. It’s true that he has clinical practice to draw on. It’s also true that he has sought out first hand accounts of bipolar, referencing a number of well-known bipolar memoirs as well as therapists’ case studies. As someone in the process of writing a memoir about growing up with untreated, uncontrolled bipolar, I of course want to people to read life writing about the condition. My goal is that eventually people will be able read my book and have improved insight into what it is like to live with the bipolar. But it is, in my view, a mistake to believe that reading bipolar memoirs and treating bipolar patients gives you permission to determine the “meaning” of bipolar disorder from the outside.

Leader’s article (he has a book coming out, so I assume this is just a snippet) focuses heavily on the accounts of people who experience mania, and in particular on the financial irresponsibility that can be characteristic of a high. The spending sprees of mania, he rightly points out, are often seen as “selfish, narcissistic rampages.” Leader, however, discerns a form of altruism at play. Manic people, he states, often squander money on other people’s behalf. Looking back to the childhoods of writers including as Kay Redfield Jamison and Stephen Fry, Leader identifies experiences in their childhoods which might have led them to feel grateful for their survival. He goes on to suggest that “the manic person might in her behaviour be showing her perception of being in debt, and the altruistic side of her manic episode might be an attempt to cancel the debt.” This sense of debt, Leader suggests, cannot easily be resolved for the bipolar person. It “crystallises neither as paranoia (‘The other is responsible’) nor as melancholia (‘I am responsible’), seesawing instead between highs and lows. If responsibility departs in the mania, it returns with a vengeance in the depression.”

At this point, I am so very tempted to contradict Leader, to bring in the accounts of bipolar people I know (and I am in contact with very many bipolars every single week via my blog and through Twitter) to explain how counterintuitive I find his gratitude/altruism theory. I could go on at length about how it is far more common to find bipolars who felt miserable, worthless and alone in their childhoods. It doesn’t make me look particularly good, but I could share my own example, along with many others, of hypo/maniac episodes filled with entirely self-centred, pleasure-seeking behaviours.

But I won’t go there, because my central point is this: a person does not get to decide the meaning of another’s illness. Not even if they share the same diagnosis, and certainly if they do not. A therapist might well become involved in guiding, assisting a client towards a meaningful interpretation of their condition. But the client, not the therapist, must discern that meaning in order for it to resonate, to be of use in living with the condition. Every time somebody with no personal experience of bipolar tells us what it represents, or what our actions mean when we are in acute phases, they are imposing their interpretation on our lives. I don’t believe I have the right to ascribe meaning to the behaviours and feelings of other bipolars; why Leader seems to think that he can analyse the entire bipolar community from the outside, based on books and case studies, I’m really not sure.

What I see at play here is the tension between “experts by training” and “experts by experience”. It would have been laudable of Leader to simply have exhorted people to pay greater attention to the lived experiences of bipolar people. The diagnostic categories can be confusing, and there is much truth in the idea that shared first hand experiences can by much more powerful than the medical profession’s parcelling up of mental health conditions into numbers or symptoms and number of days. But having wrested power from the doctors and given it back to bipolar writers, Leader simply superimposes another “expert by training” worldview on bipolar people’s experiences. It takes no account of people’s personal sense of meaning, nor of those bipolar people who feel strongly that there really is none.

Telling people to listen to us while shutting us up at the same time. More about selling books, from where I am sitting, than doing any service to the bipolar community.

 

 

 

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About purplepersuasion

40 something service user, activist, writer and mother living with bipolar disorder. Proud winner of the Mark Hanson Prize for Digital Media at the Mind Media Awards #VMGMindAwards 2013. Winner of the World in Mentalists Mood Disorder blog 2012. Regular guest blogger for the International Bipolar Foundation http://www.internationalbipolarfoundation.org/ Expert by Experience working with Mind training department. Working on The Incoming Tide, a bipolar memoir. Find me on Twitter @BipolarBlogger or at my Facebook page http://www.facebook.com/BipolarBlogger
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10 Responses to Don’t manufacture my meaning: a response to Darian Leader

  1. Jo says:

    I am a great fan of your blog, but dont agree with some of this post. The book is based pretty much completely on what patients have found out about their experiences through psychoanalysis, not what meaning the analyst has put on them. I think it wonderful that people are actually talked about bipolar, just as its great to read your brilliant blog. Surely the more people who talk about bipolar the better even if there are differences of opinions?

  2. 123be says:

    …but surely equally your point that one person can’t decide the “meaning” of another’s “illness” must also mean one person can’t decide that the “illness” necessarily has NO meaning…? While psychoanalysis is undoubtedly a controversial subject/theory/approach, one of its main influences has been to promote the idea of meaning within what we term “illness” experiences (itself a problematic term, hence my quotation marks, and the biochemical proof of any and all MH conditions is still elusive) – without which we wouldn’t have progressed within the world of psychiatry, health and social care to upholding the rights and identities of those who would otherwise be deemed meaningless and subjectless…?

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  5. butterflywgs says:

    I agree with some of this. Your main point I am completely behind – Leader is just another professional telling us what we experience. So he is at the opposite pole (;-0) to the medical model, he’s still TELLING us, interpreting our experiences for us. Not asking, not discussing.
    Plus, if he’s really based his debt/ altruism theory on a small sample of his clients, and the memoirs of a few celebs, he’s a charlatan. I did find it interesting. Depression is self-absorbed, despite the sense of worthlessness, failure and guilt we feel…in the same way it makes sense that mania could be both altruistic and selfish.
    I do believe that yes, mental illness has a meaning. It doesn’t just come out of nowhere. And it was refreshing to read something about bipolar in the mainstream media that isn’t pushing the ‘chemical imbalance, totally cured by drugs’ myth.
    Not saying there *isn’t* a chemical imbalance or drugs don’t help (*sits on fence*)…psychoanalysis might not appeal to some people, they might not want to find the meaning, and that’s OK. You’re right – we need to find our own meaning and what works for us.

    • Jo says:

      But the book is completely and utterly about what analysands have told him. To tell an analysand what they are thinking or meaning is the exact opposite of everything psychoanalysis stands for. I am one of the patients in the book, and Darian check everything that is about me with me and its totally anonymised and i wanted to be in because i want people actually to start thinking about why people get ill. He had got a few things wrong and he changed them. There are enough people not listening to us. Please don’t attack somone who has helped me stay out of hospital for ten years.

  6. Jo says:

    And this is just wrong: “why Leader seems to think that he can analyse the entire bipolar community from the outside, based on books and case studies” – he’s been listening to patients all day every day for decades, and notoriously sees patients for a few quid if they are on benefits. I love your blog though so keep it up! I completely agree with your point about people putting our meaning on us. Thats what i always had in hospital and what my GP still says.

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