Help needed! Could you participate in our research into medication choices in pregnancy?

I mentioned some time ago that I was involved in research with the McPin Foundation and UCL looking at how women make choices about whether to continue psychotropic meds in pregnancy. It’s time for an update – and a plea for your help!

I think this study is incredibly important. Not much is really known about what kind of information women are given and how supported/unsupported they feel in their decision by healthcare professionals, family or friends, nor is there much useful evidence about the safety of these drugs in pregnancy. We are hoping to improve the quality of information available by looking at outcomes (from statistical data) and what women tell us about this issue (qualitative data).

I am one of four women service users of childbearing age forming the Lived Experience Advisory Panel for the project. One of our roles is to conduct interviews with participants to obtain the qualitative data. We hope that using interviewers who have personal experience of severe mental illness helps break down barriers and encourages women to speak openly about their experiences. Our data collection is now well underway and we have some really interesting data coming through, but we still very much need women who are willing to be interviewed. We would love to hear from you if:

– you are a woman with a child under five who had to decide whether to carry on taking meds in pregnancy

– you have a diagnosis of schizophrenia, schizoaffective disorder, bipolar disorder, perinatal psychosis, depression with psychosis or borderline personality disorder

– you have been prescribed anti-psychotics or mood-stabilisers for your mental health (please note we are unable to look at decisions about antidepressants in this particular study).

If you meet the criteria we would ask for approximately one hour of your time and can conduct the interview in your own home or another place of your own choosing.

If this sounds like you, we would love you to take a look at the information sheet and get in touch with McPin. If you have a friend or relative you think may be eligible and willing to take part, please do point them in the direction of the information sheet.

Hoping to hear from some of you!

 

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About purplepersuasion

40 something service user, activist, writer and mother living with bipolar disorder. Proud winner of the Mark Hanson Prize for Digital Media at the Mind Media Awards #VMGMindAwards 2013. Winner of the World in Mentalists Mood Disorder blog 2012. Regular guest blogger for the International Bipolar Foundation http://www.internationalbipolarfoundation.org/ Expert by Experience working with Mind training department. Working on The Incoming Tide, a bipolar memoir. Find me on Twitter @BipolarBlogger or at my Facebook page http://www.facebook.com/BipolarBlogger
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4 Responses to Help needed! Could you participate in our research into medication choices in pregnancy?

  1. pixiegirle says:

    Hi, I’d love to take part, but I do not have children. I decided not to have a child but had to consider and discuss my choices re antipsychotics and mood stabilisers with my psychiatrist. If I could be of any help please let me know.

    bethan

    • Hi Bethan, I may get back to you on this…we are definitely interested in how/why women choose not to have children, and women who take the same meds in pregnancy but not for MH reasons (e.g. women with epilepsy). We’re not quite sure how to capture these other narratives yet, as they are not part of the study design but we don’t want to lose them. Unfortunately time and budget are quite tight. But hold that though in case! Charlotte

  2. Samantha wood says:

    I would like to take part if you still
    Need people

    • Hi Samantha, thank you so much! We definitely do still need people! Can you take a look at the Information Sheet, please? http://mcpin.org/wp-content/uploads/Information-sheet.pdf I’m afraid we have quite narrow criteria so best if you check your circumstances against what’s on the information sheet first. If you think you might fit the bill, please email my McPin Foundation colleague Paulina, who’s address is on the info sheet, and she will talk you through how it all works. Thanks again! Charlotte

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