Arrested adjustment

They always say the period after a hospital admission is a difficult one, but I didn’t expect it to go on and on being difficult. My mood was good in the first three weeks or so, which I at least partly attribute to the high (as in beyond normal recommendations high) dose of lamotrigine I was on. For a while, lamotrigine tends to feel like a wonder drug, but sadly for me that never lasts and the good bit tapers off.

Since then I’ve been a Home Treatment Team case for a second time and now I’m back to consultant care, trying to figure out how to cope with the side effects of aripiprazole. Ironically, I refused to even consider the drug for years because I has seen it cause horrendous agitation in others and knew I couldn’t cope with that.

Instead I have found it very sedating, confusing, making me even more uncoordinated than usual, giving me brain fog. It’s all very difficult. I’m going to have to be signed off work for longer than I thought. I’ve tried one work task (well, I say work, it’s not even paid) and it’s taking me about four times longer than normal. My concentration span is fleeting and I tire very easily. I can’t read, which is a major problem for my job.

I’m typing this surfing a wave of increased alertness that I can grab as the aripiprazole starts to wear off and before I have to take the quetiapine. It’s an unpredictable wave. It didn’t even happen yesterday.

I agreed with my consultant today that I would a) take the aripiprazole in the evening instead of the morning to see if that helps and b) come of the remaining 300mg quetiapine to see whether having both drugs in the mix is causing the sedation. We need a clearer picture of what the aripiprazole is actually doing to/for me. How fast I drop the remaining quetiapine is largely down to me.

One thing that’s remained kind of constant despite mood changes and med changes is something I’m quite ashamed of – and that’s wishing I was still in hospital.

I can’t shake it. I know it would never be the same as it was, that I would have to go into to the very treatment wards I resisted, that only two of my friends remain in hospital. But there’s been a recent period where every time I thought about my time in hospital I cried because I missed the.

My therapist has picked up on this and would like us to explore what’s going on. I think some of it is obvious. Going into suicidal crisis again a month after discharge. Feeling that between symptoms and side effects the basics are too much.

The basics include finding something to make for dinner and then making it feels like too much. Working out which meds I have to add to the community pharmacy dossette box feels like too much, although Tom does oversee this. Deciding whether to nap or not feels like too much, and so does trying to decide what to do with myself while I’m incapacitated by sedation. I can manage a bit of frivolity, a bit of distraction (Twitter followers will know I am slowly putting together a Dolly Parton costume for a party), but I struggle with anything that matters.

So a part of me doesn’t want to have to make any of these decisions or calculations. Apparently amid the frustration and boredom and infantilisation that characterises a psych ward I enjoyed feeling safe and feeling that most responsibilities had been lifted from me. I didn’t need to handle meds and I didn’t need to handle money and I didn’t need to manage meals.

I know I’ve got to a point where I am romanticising my stay and shoving the crap bits aside. I know it’d be far worse to be sedated on a hospital bed than on my own sofa with my laptop and my blanket. And I know I hated not being able to sleep in my own bed next to my husband, or indeed be able to sleep at all due to the… vocalisations of my neighbours.

I went to outpatients today and I cried in the hospital garden because I was right by the inpatient unit. I feel sad about this, and actually quite ungrateful for not being happy to be out in the community when people I know on the wards are desperate for discharge.

My longing makes a kind of sense. And yet it makes no sense.

And I remain ashamed.

 

 

 

 

 

 

 

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About purplepersuasion

40 something service user, activist, writer and mother living with bipolar disorder. Proud winner of the Mark Hanson Prize for Digital Media at the Mind Media Awards #VMGMindAwards 2013. Winner of the World in Mentalists Mood Disorder blog 2012. Regular guest blogger for the International Bipolar Foundation http://www.internationalbipolarfoundation.org/ Expert by Experience working with Mind training department. Working on The Incoming Tide, a bipolar memoir. Find me on Twitter @BipolarBlogger or at my Facebook page http://www.facebook.com/BipolarBlogger
This entry was posted in Bipolar, Crisis care, Depression, Hospital, Inpatient care, Medication, Mental health services, Mood disorder, NHS services, Psychiatry, Self-management, Therapy, Uncategorized and tagged , , , , , , , , , , , , , , , , , . Bookmark the permalink.

8 Responses to Arrested adjustment

  1. Becky Bee says:

    Oh my god, I know that feeling! Thank you for sharing it even though it must have been painful, because I thought I was alone in thinking/ feeling that way.

    • Oh Becky I thought I was going to get a lot of people having a go at me for wanting to be in when so many people are detained against their will. I thought I was the only one too, so thank you, I really appreciate your comment!

      • Becky Bee says:

        You’re welcome. I’m glad if the comment helped you feel less alone, as your post did me. There are so many complex reasons for wanting to be back in that space, I hope your therapist helps you through this.

  2. I can relate to feeling safe in hospital. It is infantalising but in a way that is easier…your world is smaller in hospital, it doesn’t involve all the problems that come up in the community.
    It’s going to be confusing and hard as it is so new, it takes time to adjust back. I hope the transition back to home goes as smoothly as it can do.
    Ask for the help you need!

  3. Vix says:

    I think also that the ‘ shame’ I feel generally about not coming up to the mark because of mental illness/ bipolar/incapacitating meds is less when in hospital – surrounded by people who just understand all the conflicting emotions and who don’t need explanations makes it in some ways a far more comfortable place to be. Once home I often feel at the mercy of other people’s expectations. Remember that once you are discharged from a hospital for any other illness ( other than mental illness) you go through a period of convalescence and rehabilitation. It’s tough and it’s slow. Unfortunately it is often a journey we have to endure over and over again , and because of that we perhaps we should be recognising our strength and resilience. We should be congratulated for every step we take.

    • I’m really sorry to hear that. For me it’s the opposite way round! I found the nurses did not not have a brilliant understanding of bipolar, much less than my husband, family and friends do. But yes, whatever the reason, we SHOULD all be congratulated for whatever we achieve, in whatever timeframe.

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